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50 posts categorized "Participatory Medicine"

October 01, 2014

HealthCamp Boston, November 3, 2014 - Register Now For The Health Innovation Unconference

HCBOS-logo-sqHealthCamp is heading back to Boston. Once again we will be at the Microsoft NERD in Cambridge, MA. This was the venue for the inaugural HealthCamp Boston in 2009 and for the second edition in 2012. We are excited to be returning to this fabulous facility.

Register now!

Our date is set. HealthCamp Boston will take place on Monday November 3, 2014.

This is the day before the Digital Healthcare Innovation Summit. So come a day early and really turbocharge your conference experience by joining other passionate healthcare innovation people at Health Care’s leading unconference – HealthCamp.

Continue reading "HealthCamp Boston, November 3, 2014 - Register Now For The Health Innovation Unconference" »

September 25, 2014

#ThinkFurther – The Future of Medicine

This post is part of the ‘Think Further’ series, sponsored by Fred Alger Management, Inc. Follow the link for more #ThinkFurther content.

It is human nature to think about the future, and to predict great advances. Fifty years from now – we say to each other – the world will be entirely different. But in what ways? Some futurists, including some great science fiction writers, get parts of the future right -- but the big picture is often elusive.

Continue reading "#ThinkFurther – The Future of Medicine" »

August 27, 2014

Health Care Conferences This Fall

Friendship Pins No 89 David HarlowYour faithful HealthBlawger will be out and about at a number of conferences and events this fall, speaking, moderating . . . and immoderately disrupting.

I hope to see you at one or more of these. See descriptions below for links to registration.

Keep an eye out for "Friendship Pins" -- my jacket from The Walking Gallery, pictured here -- and I will be in or near it.

If you are organizing a conference a little further down the road, please consider including me as a keynote speaker or otherwise. We should talk.

Here's the rundown:

HIMSS Privacy & Security Forum

September 8-9, 2014, Boston, MA

I'll be one of the general session speakers: Keeping Your Edge: Managing Social Media While Protecting Privacy & Security.

Continue reading "Health Care Conferences This Fall" »

March 27, 2014

Unlocking the Power of Health Data

3769904793_e08235af58_zA Perspectives piece I wrote was published this week by iHealthBeat - Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient privacy as data is shared for research and other purposes. Googler Larry Page and Josh Stevens of Keas have argued recently in favor of broader uses of health data, but the issue of HIPAA keeps coming up in those conversations. Most connected patients seem comfortable with the idea of sharing health data, and as more of us get connected, this sentiment is only likely to spread.

As I wrote at iHealthBeat:

I have discussed the patient donation of data before, and the first objection I heard was from a data scientist who worried that the volume of patient records collected in this manner would be too small to yield any meaningful insights. While this may be true at first, I believe that over time patients will come to prefer to set their own limits on data sharing rather than be stuck with the one-size-fits-none approach available under HIPAA. In addition, the data made available through these repositories will be more valuable than that available as de-identified data for research precisely because there are more identifiers attached.

Are we ready for a new paradigm in data sharing and big data analysis?

David Harlow
The Harlow Group LLC
Health Care Law and Consulting

photo: flickr cc Tripp

February 04, 2014

Patients to Have Right to Access Lab Test Result Data

LabtestThe lab test result data access rule is finally final.

See the HHS presser and the final rule, which is scheduled to be published on Thursday.

What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of tests conducted by freestanding labs. (The right to test results from labs within hospitals, other health care facilities and physician offices has already been in place under HIPAA, and a handful of states have already guaranteed direct patient access to freestanding lab test results.) The compliance date for the rule is eight months out, in early October, in order to give labs time to put necessary processes into place.

What exact changes were made to the regs? This was a surgical strike. The Clinical Laboratory Improvement Amendments (CLIA) regulations were revised to permit labs to provide results to patients, and the HIPAA regulations were revised to eliminate lab test results from the (very short) list of records not covered by HIPAA's patient access rule. Thus, if a patient asks, CLIA permits and HIPAA requires that a lab provide the results.

Continue reading "Patients to Have Right to Access Lab Test Result Data" »

January 03, 2014

Health IT Wisdom at the End of 2013 and Start of 2014

Janus1I am quoted in a couple of year-end / new year pieces on health IT, appearing this week in iHealthBeat and FierceHealthIT.

With new developments over the past year in the realms of telehealth, mobile health and health data privacy and security, and opportunities for accountable care organizations, integration of connected health and implementation of HIPAA compliance plans, there is plenty of material for prognosticators.

Kate Ackerman, Editor-in-Chief at iHealthBeat asked 13 experts three questions.

Here are the questions and my answers; follow the link above to read 12 other perspectives.

Continue reading "Health IT Wisdom at the End of 2013 and Start of 2014" »

November 22, 2013

The Walking Gallery of Health Care

I am proud to be a member of The Walking Gallery. If you are not familiar with Regina Holliday and her unique brand of health care activism, you should be. See her blog, and follow the links in the sidebar to more Walking Gallery details. By way of example, she has written a blog post describing each hand-painted jacket in the gallery and its connection to the wearer's health care story and his or her connection to health data liberation. You can start with her post about my jacket, Friendship Pins.

Check out the newly-released video about this ongoing project below, and join the movement:

The Walking Gallery

Continue reading "The Walking Gallery of Health Care" »

October 30, 2013

Mobile Health Apps: Pass the Secret Sauce

6029363903_0e9abdceab_mThe IMS Institute for Healthcare Informatics released a report on the ecosystem bloody mess of 40,000+ mobile health apps that are available today. Hat tip to Jane Sarasohn-Kahn for writing about it today at Health Populi.

From the executive summary:

Over time, the app maturity model will see apps progress from being recommended on an ad hoc basis by individual physicians, to systematic use in healthcare, and ultimately to an end goal of being a fully integrated component of healthcare management. There are four key steps to move through on this process: recognition by payers and providers of the role that apps can play in healthcare; security and privacy guidelines and assurances being put in place between providers, patients and app developers; systematic curation and evaluation of apps that can provide both physicians and patients with useful summarized content about apps that can aid decision-making regarding their appropriate use; and integration of apps with other aspects of patient care. Underpinning all of this will be the generation of credible evidence of value derived from the use of apps that will demonstrate the nature and magnitude of behavioral changes or improved health outcomes.

(Emphasis supplied.)

We are nowhere near this endpoint -- integration of the use of health apps into health care management -- right now, due to a number of factors.

Continue reading "Mobile Health Apps: Pass the Secret Sauce" »

September 23, 2013

HIPAA Rights, Expanded: Opening the Door to Patient Access to Lab Results

MC900389390We're inching closer to promulgation of final regulations that will likely make all lab test results more easily accessible to patients, by making them subject to the HIPAA rules ensuring patient access. (Currently, lab test results and psychiatric notes are the two lone categories of patient data not subject to HIPAA; however "in-house" labs drawn at a health care facility or medical practice are already accessible to patients under HIPAA.) This change is significant in no small part because there was no change in the law that prompted the change in regulation -- the only thing that changed was the rising voice of patients insisting on access ... and a more receptive set of ears in Washington. The proposed change in the regulation was first published two years ago. As I wrote then in a post on lab test results and proposed changes to the HIPAA rules:

This carveout of lab results from patient-accessible records has long been a thorn in the side of the e-patient.  This month, the federales announced that they would step forward as Androcles to the e-patient lion (to jumble a reference or two), and pull out the thorn, by proposing to amend both the CLIA regs and the HIPAA regs.  The HIPAA regs include the exception described above: all records must be made accessible upon request except labs and a couple others.  The lab results exception will be deleted from the HIPAA regs if the change is finalized.  The CLIA regs prohibit lab delivery of results directly to patients.  The proposed amendment says that the labs “may” release the results directly to patients.  The net effect is that patients will have the right to request the results, and since labs will be permitted to release them, they will have to do so.

Continue reading "HIPAA Rights, Expanded: Opening the Door to Patient Access to Lab Results" »

August 06, 2013

Hacking HIPAA - Join Us!

Hacking-hipaa_edited-1For years, a common refrain in the health care space has been that regulations are constraining innovation.

The latest in a long list of rules that constrain health IT development are the HIPAA/HITECH regulations. (Read all about them here on HealthBlawg.)The Federales begin enforcing these regs on September 23, 2013

HIPAA was not intended to make things worse, but the rules can lead organizations to be very conservative in their actions.

If patients want to use email, standard SMS, non-HIPAA compliant consumer device data, or applications that run on the cloud - they should be able to. Fortunately, there is a way to make this possible.

The object of the Hacking HIPAA project is to create crowdfunded legal forms based on crowdsourced ideas from the Health IT developer community as well as the health care provider and more traditional health IT communities.

Continue reading "Hacking HIPAA - Join Us!" »